Thursday Nov. 29th

We continue to take each day as it comes, we know the Lord will not give us more than we can handle. We are faithful he knows us better than we know ourselves. Each time we feel we are at our wits end we are brought back from the edge by a kind word or action from you. You all have been a part of this in some fashion. Debbie and I are not superhuman, we are doing what any of you would be doing for your family if in the same circumstance. As I have said before, we pull our strength from you, your support and prayers are what keep us strong. We thank you.

I had mentioned before Denise Corcoran has been aiding us in getting home healthcare set up, it seems her agency does not work with Blue Cross Blue Shield. Hard to believe in this day and age, BCBS isn't accepted. Anyway we thank Denise for assisting us with the shower chair, this has been a great help in keeping Christopher from being a “smelly boy”. That’s Debbie’s phrase.

Kim Hayes has organized a group of the neighborhood wives as volunteers to sit with Christopher four hours a day; this will be in addition to the home health nurse, once we get that started. This will allow Debbie time to work at least a few days a week.

We have started Christopher on the fish oil regimen, and have decided for all of us to start taking it. We are giving it to Christopher in liquid form, through the feeding tube, so he doesn't taste it. The lemon flavoring doesn't mask the true flavor. The rest of us will be taking the capsules, for sure. Hopefully after a few weeks my spelling will get better.